vrijdag 11 mei 2012

Friendship


One of the many misconceptions about people with autism is that they are not interested in others. I have always been interested in other people and ever since I can remember I wanted to have a true friend. To me friendship means most of all that you can talk to each other and be there for each other. I don’t really need friends to do things together with, but I love to discuss life in general and share ideas and advice with each other. I noticed that not everybody seems to have the same idea about friendship.

When I was a little girl we went camping every year in France. My mother told me that before my brothers were born (I was only 2 years old) I used to take my scoop and bucket and told my parents that I went looking for friends on the campingsite. A few minutes later I returned because there were’nt any children. (My parents love(d) to visit the most deserted campingsites they could find.) This is kind of the story of my life, except that now I have finally found one true friend.

During my years at elementary school I used to play with a few girls and a few boys. I had playdates with the girls, but still I felt I didn’t fit in. I couldn’t talk with them about my interests. I loved to read and make crafts. Looking back I also had a few special interests like witches, astronomy and the Dark Ages. Only my medieval interest ‘survived’ my childhood. Ofcourse other children were’nt into these things.  I can’t even remember what the other kids liked except  barbies and Madonna.

I clearly remember that I seriously prayed to find a true friend in highschool, but unfortunately my prayers weren’t answered. In highschool my feeling of not fitting in and not having any real friends only intensified. I felt really lonely. I did like to go to school because I love to study. I have very good organizing skills and a good appetite for learning new things. That kept me going.

It wasn’t until I went to college that I found a circle of friends. We all shared the experience of not fitting in during our previous school years. I finally felt like I belonged to a group. But the pressure within the group and the superficial  discussions were getting to me and I had to remove myself from that group. I desperately wanted to connect and when I finally made real contact I couldn’t deal with it.

I tried to stay in contact with a few friends from my circle, but I gradually lost contact with most of them. Only one remained… P. stood by me during my first burnout, the difficult time after my son was born, my second burnout and my diagnosis. I can talk about anything with her and I can listen to her stories and give her advice. I can tell her that I don’t feel like talking for a while because I’m tired or overwhelmed and she can tell me the same thing. We stay friends and we don’t take it personally. Her interests are not the same as mine and she doesn’t have autism, but we do share a few personality traits. We understand each other.

More and more I come to the conclusion this must be enough for me and it IS enough. Why do I keep in touch with ‘friends’ who don’t want to hear about how I’m really doing? Why do I keep on giving and why am I incapable of taking? I am always waiting to  receive… but my experience is that a lot of people just aren’t willing to give. One by one I’m letting them go. I just don’t have the energy and the will anymore to please others and hurt myself in the process. I need to be the best person I can be. I can’t give something I don’t have anymore.

woensdag 2 mei 2012

Happy Queen's Day


Happy Queen's Day!! :)


The Day After... :(

maandag 30 april 2012

Aspergermoeder to “I Wish I Didn’t Have Aspergers”: #AutismPositivity2012

We heard your cry for help, for acceptance and for recognition and we are here. YOU ARE NOT ALONE!! We know how you feel, we know what you're going through and we've all been there. I've been there, I have SO been there, only I didn't know it was called Asperger's. For me it was a daily struggle to be normal, to be accepted. Untill I found out I have Asperger's at the age of 29.

I've lived with consciously with Asperger's for two years now. And eversince I have tried to accept myself and the limits of my body and mind. Of course as a person with autism I have a lot of qualities as do others with or without autism, but I also fight daily against emotional and physical overload. A meltdown is always only one unexpected situation away. When I'm having a meltdown I try to say to myself this phrase that I saw on a calender once: "This too shall pass...". It isn't easy and it doesn't always help, but nowadays I put my energy into accepting myself and try to have selfcompassion instead of trying to fulfill everyone's expectations.

I've felt like a failure and a freak so many years and I still feel like that sometimes. I've wished a million times to be 'normal', I've cried, I've prayed, I've cursed! But nothing can change the fact that I have Asperger's, it will never go away.

Now I am leaving 'normal' behind. I embrace my quirkiness and so do my loved ones. My family accepts me for who I am, but they don't always understand me. It can still happen that I hurt them or aggravate them. That pain will always stay, but now I have found comfort and support online in this autism community. I have found help, acceptance, recognition, joy and peace. I wish you may find the same. I wish you will never feel the need again to type in "I wish I didn't have Aspergers"...

donderdag 26 april 2012

I can't escape...


… from the storm that is raging outside and in
… from Junior’s meltdowns
… from Junior’s struggle to stay calm
… from not getting enough sleep
… from the noises all around
… from sensory overload
… from my responsibilities
… from meltdown
… to my private isle of silence………

woensdag 25 april 2012

dinsdag 24 april 2012

To “I Wish I Didn’t Have Aspergers”: An #AutismPositivity2012 Flash Blog Event


To “I Wish I Didn’t Have Aspergers”: An #AutismPositivity2012 Flash Blog Event

A couple of weeks ago, someone somewhere googled “I Wish I Didn’t Have Aspergers”.  The phrase popped up in a blogging dashboard and struck the blogger as being particularly sad.  She wished she could have answered.
We don’t know who it was.  We don’t know where he/she lives.  We have no idea if he/she found what he/she was looking for in that search.
We do know that search directed that person to a blog.  We do know the searcher clicked on it in an attempt to find what they needed.  And we do know enough about the challenges of autism to know that person is likely not alone in that sentiment.
So, we got to thinking.  What would we say to that person?  What if it was a kid, desperately trying to make it through tough years of intolerance and ignorance?  What if it were a person who might never stumble across the amazing voices speaking for autism acceptance?  What if that person thought himself/herself all alone?  What would we say about the present?  What would we say about the future?  What would we say about happiness?  And hope?
Each of us in the autism community –- self-advocates, parent advocates, friends and family, teachers, health professionals—we would all have different messages for #IWishIDidn’tHaveAspergers.  But likely we would all try to send the message that there is a brighter future and that friendship and support are out there.
We are asking every blogger in the autism community to write a message of positivity to #IWishIDidntHaveAspergers.  So that next time that individual (or another) types that sad statement into Google, he or she will find what they need – support, wisdom, and messages of hope from those who understand.
And – for those of you who do not blog but wish to join in – please post your positivity message to http://autismpositivity.wordpress.com/ or send us an email at autismpositivity@gmail.com
Please join with us on the last day of Autism Awareness/Acceptance Month – April 30th – in a flash blog of autism positivity.
To participate:
  1. Publish your post on April 30th in the following title format:  “[Your Blog] to ‘I Wish I Didn’t Have Aspergers: #AutismPositivity2012”.
  2. Share your post on Twitter and Facebook, using that hashtag.
  3. Add your link to the Autism Positivity website and grab the badge:
  4. Share/reblog this message to your blog, page, etc.
This Autism Positivity Flash Blog Event is the brainchild of Thinking About Perspectives, a group of bloggers committed to increasing autism awareness and acceptance via open and respectful dialogue.  We are:  30 Days of Autism,Outrunning the StormThe Third GlanceAspie KidFlappiness IsQuirky and LaughingLife on the SpectrumFairy Tale ForgottenThe Aspie Side of Life, and Inner Aspie.

vrijdag 20 april 2012

Meltdown triggers


Ever since I found out I have Asperger’s, me and my husband have been working on preventing my meltdowns and finding out what the triggers are. The last time I nearly had a major meltdown was last week and for the first time we could actually prevent it from happening! After 2 years I can finally make it clear to my husband that I’m about to have a meltdown. He stepped in immediately and handled the care for our son and the other things he now knowes I can’t handle at times like these.

It remains a mystery to me though why my husband can’t see a meltdown coming himself and why my communication is sometimes not clear enough to him. I say things like ‘I’m really exhausted’ and ‘I’m not sure I can cope for much longer’. It seems to me that that says it all doesn’t it?? I’m just hoping my husband and I can keep working together like we did last week to avoid major overload.

Over the past 2 years I have discovered what the most important triggers of meltdowns are for me. These are the things that trigger me most:

1.       Not getting enough sleep – I need at least 9 hours sleep every night, needless to say that I am often deprived of enough sleep having a 3-year-old…
2.       My planned alone time is unexpectedly filled with obligations or time with others – and by ‘alone time’ I mean time I spend at home being just by myself (husband at work, Junior at preschool, this is about 5 hours every week)
3.       Junior being sick – when he is sick the only thing he wants is sit beside me (not his dad or anyone else) and watch television all day
4.       Me myself being sick – the worst situation is 3) and 4) happening at one time which does happen often since I catch every cold my son brings home (I am a little astmatic)
5.       Suffering from PMS – always fun to be a woman…

Since I have been aware of these triggers I try to relax more when one of these 5 things occur. I have to take a rest and prevent myself from powering through. This is a real challenge, since pushing myself over the edge and telling myself ‘I’m just a whiner, get over it’ used to be my surviving strategy. I keep getting better at avoiding meltdown which feels really good!

There is something else I use to calm myself down besides taking more rest. I sometimes use affirmations or mantra’s. This may seem like something only buddhist monks do, but I found out it really works for me. I will give an example. Often I have difficulty falling asleep because it’s so ‘busy’ in my head. I always have a lot to think about, but then I tell myself ‘you can go to sleep now’. This means I don’t have to sort of ‘finish’ all my thoughts and I can go to sleep and continue tomorrow. It really helps!

Altogether I feel I can cope so much better now compared to a few years ago. I have a lot more compassion with myself, because I allow myself to rebuild my strengths before taking up a new challenge. So I’ll happily carry on.